Director of Family Support in at Prader-Willi Syndrome Association | USA

JOB SUMMARY: The Director of Family Support is responsible for providing written and verbal information and education to PWSA | USA’s stakeholders, including parents, health care providers, educators, and professional providers. The Director of Family Support is the manager of the Family Support team which coordinates programs to help families with behavior management, nutrition education, crisis intervention, special education, advocacy, guardianship, and medical intervention and is responsible for all duties including Family Support Counselors, Parent Mentoring and Medical/Research programming.

JOB DUTIES AND RESPONSIBILITIES:

Family Support Responsibilities

• Respond to Family Support inquiries directly or by routing to appropriate staff via phone call or email within 24 business hours.
• Participate in bi-monthly staff, committee, and team meetings.
• Participate in 1:1 supervision meetings with each staff weekly
• Attend PWSA | USA’s biennial National Convention.
• Review and update Family Support resources as needed based on current trends.
• Along with the Medical/Research Coordinator remain current in the latest advances and research pertaining to PWS.
• Track and report on family support metrics as they pertain to the Family Support team.
• Document all family support contacts in our CRM database.
• Assist in the collaboration of the family support team and PWSA | USA staff to continuously monitor and respond to the trends in the PWS community.
• Responsible for staff accountability.
• Works with the CEO to ensure that long and short-term strategic plans are established, attainable, measurable, and timely.
• Engage in the stewardship of families where appropriate.
• Provide written information for newsletters, blogs and website as requested.
• Management of organizational development activities such as staff collaboration, teamwork, and workflow.
• Assist in writing and securing of grants where needed.
• Development, implementation, and monitoring of Standard Operating Procedures.
• Responsible for the management and implementation of PWSA | USA Project ECHO.
• Perform other duties as may be requested.

QUALIFICATIONS: Required to perform the essential functions. List knowledge skills and abilities required.

A) Communication Skills:

Must possess excellent communication skills including oral, written, and listening. These skills may be used when coordinating projects, meeting with families, and presenting information. Must also be able to tailor communication skills to suit an audience to enhance assimilation. Excellent writing skills are necessary to assist with written assessments, reports, correspondence, etc.

B) Reasoning Ability:

Ability to read and to present clear, concise, detailed, or summary information for insightful and effective decision making related to residential/clinical services. Ability to prepare and maintain accurate records, skilled in data collection and electronic data management, as well as competent in basic program reporting.

C) Knowledge required:

General knowledge about PWS or intellectual/developmental disabilities required.

D) Management and Organizational Development

Strong relationship building and communication skills with experience leading diverse remote work teams, developing an organization-wide strategy for program excellence, engaging community partners, and collaborating with a CEO and board of directors.

Education:

Successful candidate must have a master’s degree in human services or related field. Individual must be organized and have excellent communication skills. Individual must also be able to perform the physical and mental responsibilities of the position. The selected candidate must pass all personal and professional screenings required by the agency.

Experience and Requirements:

• Successful candidate must have a master’s degree, minimum of one year of experience counseling or working with individuals diagnosed with PWS or ID/DD and five years of experience supervising or managing staff and working on organizational development projects and activities.
• Ability to generate electronic reports and documents is required; Internet access is also necessary.
• It is expected that the individual will work flexible hours within a Monday-Friday, 40 hour work week, and will be available as necessary to work additional hours.
• Required to have sound decision making abilities.
• The highest level of confidentiality is expected of an employee in this position. All information within the Family Support team is confidential and must be respected as such.